The last three days have been a little hard. The prednisone that I'm currently taking gave me more energy in the beginning, so I felt little better. The bad news about this is that I felt good enough to do too much. I now have limits that I cannot go past. It's hard. I was expecting my parents to be here on Thursday, so I cleaned. I cleaned a little too much the past 3 days. I woke up with this rash Thursday morning. It was hot and itchy.
About 2 hours before they got here I started to crash, feeling fatigued, and sick. After they got here my pinky on my right hand started to throb. My joints started to turn red, and my hand started to swell. Then like that I couldn't use my hand at all. The sensation started to crawl up my arm and into my neck just under my right ear. Ever since that day I have had unending dizziness that makes me feel nauseous. I wake up with a rash similar to this almost everyday. I wake up in the middle of the night with pain everywhere. It's almost like an ache in my bones.
Today has been very foggy. I haven't been able to have a proper conversation with anyone. I stop a lot to think while I'm talking. Remembering anything is hard. I ran to the store with my mom this afternoon and I stayed in the car while she ran in and my face started to burn. I wasn't in the car for that long. Now my whole body is starting to ache all over. It hurts to touch my skin.
I've been following orders.I haven't been up doing anything. People are waiting on me hand and foot. I'm taking my medicine the way I should be. Nothing seems to be helping at this point. I've scheduled my Rheumatologist appointment for April 19th. I see my primary physician on Monday afternoon. Not sure what else he can do for me until I see the specialist.
I've learned a valuable lesson this week. Not to over do it. Take my time with everything I do. Some things just can't get done. I used to be limitless. I could do whatever whenever. I'm no longer limitless. I have to learn how to live all over again. I have to set new limitations. I have to let go of the controller in me and allow people to help me.
Until next time,
XOXO
Mel
It's so hard to make yourself stop doing things when your having a good day. You never know when you will feel this good again. You just want to cram everything you have wanted to do into one day but then you have to pay for over doing it later. It really sucks :(
ReplyDeleteThis is totally the truth. Definitely not easy to stop. For every good day there are no less than two bad days.
Delete